CFLifeCare Blog

Posted on February 12, 2018 in

by Stacy Carmona 

Explaining a Diagnosis of Cystic Fibrosis
Posted on January 10, 2018 in Patients, Caregivers

Explaining a diagnosis of cystic fibrosis to family members and friends can be a challenge. Here we try to make it a little less difficult.

Posted on July 11, 2017 in

Written by Stacy Carmona 

Life gets busy, with or without a chronic illness like cystic fibrosis. It is rare that anyone has an extra couple of hours in their day even with something as necessary as breathing treatments, airway clearance and all of the other therapies necessary for a person with cystic fibrosis.

Posted on July 7, 2017 in Patients, Caregivers

By Kim Kromash

It’s SUMMER TIME!! Can you believe it? This year has gone by way too fast! But I guess we say that every year… With Florida’s hot and sweaty summer being here, I have to think of activities to keep the kids entertained and busy and having one child with cystic fibrosis, that is not always an easy task. 

Going to college when you have Cystic Fibrosis
Posted on June 29, 2017 in

Written by Stacy Motenko, a CF adult.

Going from high school to college can be a scary transition for anyone, but having cystic fibrosis makes things even more complicated.  It is important that people with cystic fibrosis feel confident and prepared to go away to school and to take care of themselves.

Posted on June 21, 2017 in Caregivers

By Kim Kromash, CF Mom

As a mother of a child with cystic fibrosis, I'm not one hundred percent sure what it’s exactly like having a brother or sister with cystic fibrosis but, I do have two boys that are two years apart, one with cystic fibrosis and the other without cystic fibrosis. I can tell you what it's like having a sibling with cystic fibrosis through a mother’s eyes.

Posted on June 20, 2017 in Patients

Written by Stacy Carmona

Attending college is an exciting, nerve wracking, amazing experience and a great milestone for most, but for those of us with cystic fibrosis, it is one that we long for even more so. We have our day-to-day challenges and how we are going to pay for our education should not be one of them.

Posted on June 18, 2017 in Patients, Caregivers

By Kim Kromash, CF Mom

With today being father’s day what a good time to acknowledge what a great father and caregiver my husband is to our son with cystic fibrosis. From day one my husband has been very hands on and helpful with our son Joey.

The Connection Between Cystic Fibrosis and Surfing
Posted on June 6, 2017 in

Several years ago, doctors in Australia noticed that surfers with cystic fibrosis were living longer and had better overall lung health than those who didn’t surf.  They began to examine the reasons behind this and they discovered that those outcomes were due in large part to the salty water and air that the surfers immersed themselves in on a regular basis.  By inhaling the saltwater mist, it was actually rehydrating the lining of the lungs and allowing people with CF to more easily eliminate mucus and bacteria. This discovery led researchers to develop what is now known as hypertonic saline, which is a saltwater solution that is inhaled into the lungs and used daily by those with CF.  In a way, people with CF are having a mini-surf session when they use hypertonic saline.

How can I change my mail-order pharmacy to a specialty pharmacy?
Posted on June 6, 2017 in

By Stacy Motenko

With the ever changing landscape of healthcare, there is less and less opportunity for patients to choose where they receive care and what pharmacy they use. Many patients are being mandated by their insurance companies to use their in-house mail-order specialty pharmacy for their specialty medications. If the patients do not comply, they may face penalties or not be able to get their medications covered by insurance. 



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